The Improving Access to Palliative Care Special Collection was available as a searchable online collection from 2014 until 2021. This collection was made possible by The Atlantic Philanthropies. A bibliography detailing the contents of the collection follows this archive description. Titles continue to be accessible via www.issuelab.org.
Archived date: August 4, 2021
Collection title: Improving Access to Palliative Care Special Collection
Collection URL: https://palliativecare.issuelab.org
Title count: 119 titles
Creator: IssueLab, a service of Foundation Center
Description: Will you get the care you need when you face a serious illness? It depends on who you are and where you live. This collection brings together evidence and insights about the millions of people worldwide who are denied access to palliative care and what organizations are doing to help them.
"Who Is Affected?" - People with Addictions; People with Cancer; People with Chronic Illness; People with Dementia; People at the End of Life; People with HIV/AIDS; People with Mental Illness; People in Pain; People Living in Underserved Countries; People Living in Underserved Regions; People Living in Rural Communities; People in an Assisted Living Facility; People in a Community-based Care Setting; People in an Elderly Care Facility; People in a Home-based Care Setting; People in a Homeless Shelter; People in Hospice; People in a Hospital; People in Prison; People with a Disability
"What Are Common Barriers?" - Racial and Ethnic Discrimination; Gender and Sexuality Discrimination; Age Discrimination; Cultural & Religious Discrimination; Illiteracy; Lack of Legal Recognition; Language Barriers; Medical Staff Discrimination/Ignorance; Drug Costs; Inadequate Funding; Payment Structures; Poverty; Eligibility Criteria; Time Limits on Care; Distance to Services; Drug Availability; Insufficient Palliative Care Staff/Physicians; Lack of Facilities/Beds; Lack of Medical Equipment; Lack of Psychosocial Care; Lack of Coordination Between Providers; Lack of Government Coordination; Lack of Referrals or Late Referrals; Limited Patient Data Tracking Systems; Overly Restrictive Drug Policies/Laws; Fear of Addiction; Lack of Knowledge About Palliative Care Options; Lack of Understanding About Conditions; Poor Communication Between Providers & Patients
"What Are Some Recommended Solutions?" - Additional Research on Attitudes Towards Palliative Care; Additional Research on Models of Care; Additional Research on Needs of Specific Communities or Populations; Additional Research on the Value of Hospice and Palliative Care; Bereavement Support; Caregiver Support and Engagement; Greater Availability of Pain-relief Drugs; Psychosocial Support; Alternative Payment Structures; Community Education About the Need for Advanced Care Planning; Greater Trust and Awareness Through Existing Leaders; Increased Community Awareness About Palliative Care Options; Cultural Brokerage Services; Staff with Similar Demographics as Clients; Translation Services; Better Tracking of Patient Data and Preferences; Greater Knowledge Sharing; Stronger Referral Networks and Systems; Greater Community Engagement and Partnership; Greater Coordination Between Providers; Integration into Community-based Settings; Integration Into Disease Control Strategies; Integration Into Home-care Systems; National Palliative Care Policies; Recognition of Legal Rights of Specific Populations; Recognition of Palliative Care as a Human Right; Reform of Drug Control Regulations; Palliative Care Training for Medical Staff; Train Staff in Culturally Sensitive Care