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CalAIM Community Supports: Promoting Independent Living Among Older Adults and People with Disabilities

April 26, 2022

Through CalAIM (California Advancing and Innovating Medi-Cal), a multiyear initiative to transform the Medi-Cal program, managed care plans now have the option to offer any of 14 Community Supports that provide person-centered services to address a variety of social drivers of health. Several of these Community Supports could help older adults and people with disabilities remain in their own homes, participate in their communities, and live independently in the setting of their choice.To support understanding and increased uptake of these services over time, this report provides an overview of and evidence summary for six Community Supports most relevant to supporting independent living for older adults and people with disabilities, including:Respite Services. Short-term services aimed at providing relief to caregivers of those who require occasional or temporary assistance or supervision.Nursing Facility Transition / Diversion to Assisted Living Facilities. Services that help people remain in the community by facilitating transitions from a nursing facility back into a home-like, community setting or prevent nursing facility admissions for those with imminent need.Community Transition Services / Nursing Facility Transition to a Home. Nonrecurring support, including setup expenses, to avoid further institutionalization and help people remain in the community as they return home from a licensed nursing facility.Personal Care and Homemaker Services. Supports for people needing assistance with daily activities, such as bathing, dressing, cooking, eating, and personal hygiene.Environmental Accessibility Adaptations (Home Modifications). Physical adaptations to a home when necessary to ensure health, welfare, and safety, or promote greater independence at home through improved functionality and mobility.Medically Supportive Food / Meals / Medically Tailored Meals. Meal services to help people achieve their nutritional goals at critical times (such as after a hospital or nursing facility stay) to regain and maintain their health.

Being an Immigrant with Disabilities: Characteristics of a population facing multiple structural challenges

April 25, 2022

Immigrants with disabilities face multiple structural challenges, including discrimination, socioeconomic disadvantage, and barriers to safety net access. However, limited research discusses the prevalence of disability among nonelderly adult immigrants and the characteristics of this population. Drawing on five-year estimates from the 2015 to 2019 American Community Survey, this brief provides a snapshot of select characteristics of nonelderly immigrants with disabilities ages 18 to 64. Overall, 5.6 percent of nonelderly immigrants have a disability. Disaggregation by race and ethnicity shows us that this prevalence is highest among nonelderly Black Latinx immigrants at 10.2 percent and lowest for non-Latinx Asian immigrants at 4.2 percent. Other key findings are as follows:Roughly 1 in 3 (35.3 percent) immigrants with disabilities has limited English proficiency.About 3 in 10 (30.7 percent) immigrants with disabilities are from Mexico.Nearly half (49.3 percent) of nonelderly immigrants with disabilities report having low family incomes (under 200 percent of the family federal poverty level).About four in 10 (41.4 percent) immigrants with disabilities are employed. Three in 10 (30.0 percent) immigrants with disabilities are working in service occupations, such as janitors and building cleaners, housekeeping cleaners, and personal care aides.One in 8 (12.7 percent) immigrants with disabilities reported receiving Supplemental Security Income in the 12 months before the survey.Three in 10 (30.3 percent) noncitizens report being uninsured at the time of the survey, while 1 in 10 (9.5 percent) naturalized citizens report being uninsured.The results presented in this brief can inform efforts to improve the well-being of immigrants with disabilities through strategies such as increased access to government public services, improvements in job access and quality, and development of community models to promote disability inclusion.

Reproductive Justice for Disabled Women: Ending Systemic Discrimination

April 13, 2022

Access to reproductive health care continues to be eroded in the United States. In 2022 alone, 41 states have introduced more than 500 abortion restrictions, and the U.S. Supreme Court is slated to decide a case that will determine the fate of Roe v. Wade. Attacks on reproductive health care have a disproportionate impact on certain individuals and communities—particularly the disability community.Reproductive and disability justice are both human rights-based frameworks that, at their core, share fundamental similarities: They both prioritize the right to bodily autonomy and self-determination; the right to raise children—if one chooses to have them—with dignity and in a safe environment; the right to access the health care one needs, free from political interference or stigmatization; and the right to community care. Yet even with such overlaps, the reproductive justice and disability justice movements have rarely interacted due to misunderstanding and miscommunication, particularly around abortion.This report reviews the historical context of the disability and reproductive justice movements, discussing how racism, sexism, and ableism have built discriminatory structures—from barriers to accessing reproductive health services to issues around forced sterilization, sex education, guardianship, parenthood, and sexual violence—that have kept disabled people, particularly disabled people of color, from achieving reproductive equity and justice. It then discusses the work done by the Disability Justice Initiative at the Center for American Progress, which is an interdisciplinary team that utilizes a disability justice framework to study structural discrimination and its impacts on policy. Lastly, this report outlines future plans, emphasizing the importance of collaboration between the two movements.

Beginning the Journey: Disability Inclusion Pledge Survey Findings and Recommendations

March 3, 2022

The Disability & Philanthropy Forum is an emerging philanthropy-serving organization created by the Presidents' Council on Disability Inclusion in Philanthropy. Central to the Forum's mission is expanding philanthropic commitment to disability rights and justice by centering the leadership of the disability community.To help funders and philanthropy-serving organizations as they engage in their disability inclusion journeys, the Forum created the Disability Inclusion Pledge. The Pledge identifies concrete ways for funders and others in the sector to actively shift away from policies and practices that perpetuate ableism — the systemic stigmatization of and discrimination against people with disabilities — and uplift disability as an essential component of advancing equity.Beginning the Journey: Disability Inclusion Pledge Survey Findings and Recommendations provides a baseline measurement of how current practices and plans of responding Pledge signatories align with each of the eight action agendas included in the Pledge.

Health Care Outreach Toolkit

July 27, 2021

This toolkit offers guidance for aging and disability community-based organizations (CBOs), such as Area Agencies on Aging (AAAs) and Centers for Independent Living (CILs), that are in the early stages of seeking to contract with health care providers and payers to provide home and community-based services and supports. CBOs at various stages of contracting with health care entities can use this toolkit as a primer on how to conduct outreach and how to craft messages best suited to potential contracting targets.

Enhancing Accessibility in U.S. Elections

July 8, 2021

In 2020, voters with disabilities turned out in force in one of the most consequential elections in U.S. history. According to data compiled by the U.S. Census Bureau, nearly 62 percent of disabled voters cast a ballot in the November 2020 election, compared with just about 56 percent of disabled voters who participated in the 2016 presidential election. 2020's high turnout is demonstrative of disabled voters' unwavering resolve to make their voices heard and to fully participate in American democracy. While all voters—regardless of disability status—experienced difficulties in registering to vote and casting ballots last year due to the coronavirus pandemic, disabled voters faced particularly significant challenges. This report examines the barriers disabled voters face when participating in elections and proposes solutions for improving the voting experience and encouraging voter participation.

Supporting DeafBlind Children and Youth in Minnesota: A Strategic Plan to Move Forward

June 1, 2021

Wilder Research worked with MNCDHH to create a data-informed strategic plan for better supporting DeafBlind children and youth in Minnesota. This report presents the results of discussions with an advisory group and in-depth interviews with DeafBlind young adults, parents of DeafBlind children, and professionals.

Social Economy for the Full Inclusion of People with Disabilities : Best Practice Guide

December 1, 2020

This publication aims to raise awareness and promote the potential of European social economy enterprises and organisations in the inclusion of people with disabilities by sharing good practices which look at: employment, training and education, services and accessibility.The content of this guide is based on information and expertise provided and gathered by members of the Social Economy and Disability Working Group (SE&D)  through consultation with the Social Economy Europe (SEE) member organisations and partners, as well as other relevant stakeholders in the field.

How Do They Do It? EFC Members Share Good Practice on Organising Accessible Events

November 23, 2020

This publication of the European Foundation Centre (EFC) Disability Thematic Network features case studies by European foundations who each share their insights and lessons learned from organising accessible events that are inclusive for persons with disabilities. Alongside the case studies is a checklist for events planners to use when organising accessible events, both offline and online, covering everything from initial planning, through to communications around the event, venues, and sessions. A set of recommendations on how to make the process easier and more efficient is also included.

Come lo fanno? I partecipanti dell'EFC condividono le buone pratiche sull'organizzazione di eventi accessibili

November 23, 2020

Questa pubblicazione del Disability Thematic Network dell'European Foundation Centre (EFC) presenta alcuni esempi di esperienze fatte dalle fondazioni europee nell'organizzazione di eventi accessibili ed inclusivi per le persone con disabilità. La pubblicazione include anche una checklist per gli organizzatori di eventi da utilizzare nell'organizzazione di eventi accessibili, sia offline che online, dalla pianificazione iniziale alla comunicazione dell'evento, ai luoghi e alle sessioni. È inclusa anche una serie di raccomandazioni su come rendere il processo più facile ed efficiente.This publication of the European Foundation Centre (EFC) Disability Thematic Network features case studies by European foundations who each share their insights and lessons learned from organising accessible events that are inclusive for persons with disabilities. Alongside the case studies is a checklist for events planners to use when organising accessible events, both offline and online, covering everything from initial planning, through to communications around the event, venues, and sessions. A set of recommendations on how to make the process easier and more efficient is also included.English version:

Disability rights during the pandemic: A global report on findings of the COVID-19 Disability Rights Monitor

October 22, 2020

The report sets out the outcomes of a rapid human rights-based global monitoring initiative – the COVID-19 Disability Rights Monitor (COVID-DRM) – sponsored by a consortium of seven leading disability rights organisations, which took place between 20 April and 8 August this year. Through centring the testimonies of 2,152 respondents from 134 countries, predominantly from persons with disabilities themselves, the report draws the worrying conclusion that states have overwhelmingly failed to take sufficient measures to protect the rights of persons with disabilities in their responses to the pandemic.Perhaps most troubling of all, it highlights that some states have actively pursued policies which result in wide-scale violations of the rights to life and health of persons with disabilities, as well as impacting on a wide range of other rights including the rights to liberty; freedom from torture, ill-treatment, exploitation, violence and abuse; the rights to independent living and inclusion in the community, and to inclusive education, among others. Such practices give rise to specific instances of discrimination on the basis of disability, and must be directly challenged and prevented.Notably, these issues are not confined to developing countries alone. While the pandemic has strained public authorities in virtually every country, one significant finding of this study is that persons with disabilities report being left behind in countries regardless of their level of development, across both wealthy and developing states. In many cases, the disproportionate impact of the virus and state responses could have been predictable – and steps should have been taken to mitigate some of the worst effects. In some cases, the failure to act has had fatal consequences. In other cases, states have taken actions which cause further harm to persons with disabilities such as through denying access to basic and emergency health care, imposing dangerous lockdowns on overcrowded institutions, and through heavy-handed enforcement of public security measures.

Disability Inclusion in Philanthropy

October 1, 2020

As a growing number of foundations consider disability inclusion in the context of their internal policies and practices as well as their external-facing work, the need to strengthen the infrastructure and ecosystem that supports those efforts is becoming increasingly important. This working paper, commissioned by the National Network of Consultants to Grantmakers (NNCG), provides a high-level overview of the current philanthropic landscape—the ways in which foundations are incorporating disability inclusion into their work as well as the ways in which consultants have been supporting their efforts.